i found another website about silent reflux and this mom's story is very similar to mine with kinsley. they way she said she was feeling is dead on, although i have not thought about dropping kinsley off at the hospital and leaving as she felt like doing with her son, i do feel like i am doing everything wrong and a day of screaming really wears me out, emotionally, mentally and physically. i do take my breaks and leave her screaming places to clear my head, but really that makes me feel worse sometimes. it is one thing if she is screaming because she is tried or something else but not when i now she is hurting on top of being exhausted and she just can't figure it out for herself yet. below is the link to the story if you feel like reading it.
http://www.associatedcontent.com/article/88167/the_symptoms_of_silent_reflux.html?cat=25
she mentions a few symptoms her son had that were not on the other site such as seeming to eat all the time or eating like crazy, poor sleep, gagging with own fist, and chocking. kinsley has done all of these. although her feeding has gotten better she does eat alot and when she eats she eats forever. also she gags herself with her fingers all the time now that she can get them in her mouth i thought that was just a baby thing but maybe not! and well her sleep just all out sucks, it doesn't happen at all!!! i think she is supposed to get 15 ours at this age and we are lucky if she gets 10, and that is with naps lasting all of 45 min. on a god day!! as for chocking kinsley has done that since day 1 and all the time, she turns beat red, gets teary eyed and coughs it out. that is her normal. oh it also mentioned burping alot...i always put that under the gassy category so i may have been wrong on that one, although she is a gassy girl too!!!!
as for my doctor, i am sure he will be on board. he has mentioned silent reflux, but by 3 months alot of babies figure things out and i was not mentioning all these symptoms because i thought they were unrelated. so we were taking the wait and see approach but i am tired of waiting!
i am continuing on with my diet but i just really feel like we will end up on meds. i feel so bad for her and just want to end her pain soon. today was a very rough day and it just kills me to know that she is hurting and has been for about 4 months now. i hate to think that her normal is pain.
hopefully by this time next week we will have this all figured out, the diet is for 2 weeks but if i see no change by the doctor's appt i will probably go the med route, at this point i just want her to be a happy baby, who is pain free.
i am not the best writer so hopefully you could follow all of that, but read the website, it is well written and is pretty close to what my every day is like. i will post others if i find any that help me explain myself.
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Life with our 3 little angels...well sometimes!
4 comments:
I am a friend of Beth Mustaine and have another possible option for you. I live in Boston and work for Early Intervention. We work with kids with all different areas of difficulty. We see this a lot. There is a similar program in Ohio that I am sure your doctor would know about. Early Intervention can assist by sending someone to your home either weekly or monthly that has expertise in this area. Also, it's usually no cost to families and is picked up by insurance.
Just a thought.
Prevacid, prevacid, prevacid........I'm not a huge "medication" person, but it works wonders.....and Jorie is already almost off of it.
p.s. Your Dr. might want to try her on something called axid first....my recommendation would be to ask if you could go straight to the prevacid. Oh...by the way, hats off to you for trying the elimination diet! They told me that is what they wanted me to try and I told them I wasn't a bird and I'd try the formula. How's that for a bad parent? After two weeks on formula, there was no change.....she then went back to breast milk and the 15 mg. of prevacid a day and she's just peachy now! Good luck, Annie. I totally know what you are going through. HUGS! :)
Michelle here again. =)Early Intervention services exist in Also, I'd ask your pediatrician.
In our program, we send out an occupational therapist that is trained in feeding (including reflux). They have lots of experience in helping parents and dealing with medical people. Just a thought. Hope that helps. Leave me another message on my blog if you have more questions. Good luck!
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